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Category: Treatment

Treatment 4

How Your Care Team Will Help You _ Receiving a DMD diagnosis is difficult, but you are not alone. There is an extensive care team available to DMD patients, and they will be able to offer information and support as you need it, so please reach out to them. Your DMD care team may include […]

Treatment 3

Duchenne Muscular Dystrophy (DMD) Supportive Care: What are the Options? _ Managing DMD takes more than just medication DMD weakens muscles in the entire body, so it can have very wide-ranging effects. This makes people with the disorder more susceptible to a host of complications.The best way to manage DMD is to try a combination […]

Treatment 2

DMD Medications: What Are the Options? _ Taking medicine can help protect the muscles and ease symptoms of DMD, even though they cannot cure the disease. Corticosteroids Corticosteroids the most-prescribed DMD treatment. Both the American Academy of Neurology (AAN) and the U.S. Centers for Disease Control and Prevention (CDC) guidelines recommend a special kind of […]

Treatment 1

Treatment Overview _ Early intervention is key to preserve muscles and mobility With early detection, a child with Duchenne’s Muscular Dystrophy (DMD), can get treatment to slow the progress of the disease. This means that your child or young person may stay mobile longer and live more independently and longer than they would without specialized […]

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Date of preparation: September 2022
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Terms and conditions

Important Terms and Concepts

Basic terms and key definitions

Neuromuscular disorders

Neuromuscular disorders affect the muscles and nerves, and most of the causes are genetic. This means they are either passed down through the family or caused by changes in an individual person’s genes.

Most neuromuscular disorders cause muscle weakness that worsens over time. Signs and symptoms of neuromuscular diseases can vary and may be mild, moderate, or severe.

Most often, when a child has a neuromuscular disease, they don’t grow and develop as fast as other children their age. They are often slow to start lifting their head, sitting, walking, and talking.

Treatment and supportive care may improve the symptoms of a neuromuscular disorder, increasing mobility and even life expectancy.

Muscular dystrophy

Muscular dystrophy is the term for a group of neuromuscular disorders that cause muscle weakness and muscle loss.

Duchenne muscular dystrophy (DMD) is a type of muscular dystrophy that causes muscle weakness that worsens over time. The progression and symptoms can vary from person to person.